The beginning of 2020 brought some new challenges to Gracie’s life. We have been in ICU of Nicklaus Children’s Hospital since the early hours of Thursday, February 20th. Gracie’s medical issues have included pneumonia, aspiration, swallowing difficulties, collapsed lung, and general breathing difficulties. We have tried to move forward from entubation, to BiPap, to regular oxygen, but her body is struggling with each step. She is currently entubated and sedated. Sometimes she can communicate by hand signals, nods and eye expressions. But she is unable to speak for now. Gracie may need a tracheotomy.

In this photo, Gracie was able to enjoy a visit from Juju the Australian Shepherd, a therapy dog.

Prayer Requests

• pray for God to reveal His glory through a perfect miracle of complete healing
• pray for Dad and Mom’s health, physical and emotional
• pray for wisdom and God’s guidance to make the right decisions for her best
• communication with Grace while we wait on God
• comfort and peace for Grace

Other Ways to Help

Many of you have offered to help in any way you can. If the Lord permits and we are able to bring Gracie home with a Trach and ventilator, we will need to make many changes at home, specifically making space for equipment and maintaining the quality of the air. If God puts it in your heart, please stand by as I try to plan a simplification, and clearing out of extra stuff in my house, donations, and cleaning. I am very much against asking other people to clean my messes, but I know there are many who are blessed by helping others. And who am I to take your blessing!

Please stay tuned. I will try to make morning and evening updates on this blog. God bless every one of you who is reading this and cares about Gracie.

Febe (Neydie)