Category Archives: Uncategorized

We made it to the seventh day! So they did the procedure this morning of changing the trach. Thank God it all went quickly, and well. The plan is to get her more mobile once they wean her off the … Continue reading →

Toby misses Gracie too. Friends and family, today is Monday and we are just a couple of days away from changing her trach to a different device. We are hoping and praying that the Wednesday, March 18 procedure to change … Continue reading →

The beginning of 2020 brought some new challenges to Gracie’s life. We have been in ICU of Nicklaus Children’s Hospital since the early hours of Thursday, February 20th. Gracie’s medical issues have included pneumonia, aspiration, swallowing difficulties, collapsed lung, and … Continue reading →

As many of you know, Gracie has been participating in a clinical trial to treat her genetic condition at CHOP, the Children’s Hospital of Philadelphia. Because of this, we visit Philadelphia several times a year. This year, the first visit … Continue reading →

Dearest family, friends, and supporters of TeamGracie. We are so grateful for another great year at the Walk the Talk Epilepsy Foundation Walkathon! You are so appreciated for your prayers, donations, support, and walking. We can’t thank you enough for … Continue reading →

Contact Febe at 786-280-8330 or @feebls for more details. This is the link to Register to Walk with TeamGracie.org and/or Make a Donation through TeamGracie.org We hope to see you there!

  The Unmasking Epilepsy Event  successfully raises funds for the Epilepsy Foundation through its silent auction and various other fundraising efforts in the Fall. This year, the Romeros were humbled and honored to receive the Champion of the Heart Award, … Continue reading →

Gracie’s face has been “gracing” the front page of the Epilepsy Foundation lately. We are so proud of her hard work and dedication to this worthy cause. Please join us again this year on March 12th at Tropical Park for … Continue reading →

Gracie makes the cover of Epilepsy Foundation’s Facebook Page. This photo was taken at the 2014 Epilepsy Foundation Walk the Talk Walkathon in March. Every purple balloon is held by a Team Gracie representative!